github.com/muccg/rdrf ↗

The Rare Disease Registry Framework (RDRF) is an open source tool for the creation of web-based patient registries.

An animated visualization of muccg/rdrf's Git history from November 2013 to January 2021, built by 23 contributors. The codebase reached 15,513 lines, mostly JavaScript. The video runs 4 minutes 31 seconds.

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Language

JavaScript

Contributors

23

Lines of Code

15,513

From

2013-11-14

To

2021-01-07

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About muccg/rdrf

The Rare Disease Registry Framework (RDRF) is an open-source platform for building web-based patient registries focused on rare diseases. Developed at the Centre for Comparative Genomics at Murdoch University in Western Australia, it enables organizations to create and manage medical registries without requiring source code modifications.

What distinguishes RDRF is its use of reusable data element definitions called Common Data Elements, which can be created or loaded into the system at runtime. This approach allows data entry forms and questionnaires to be customized and updated dynamically, meaning registry structures can be adapted to changing requirements without developer intervention. The framework has been used in production for multiple disease registries, including the New Zealand Neuromuscular Disease Registry.

The project uses Python for backend development with Docker and docker-compose for development environments. Development is managed through a helper script that orchestrates containerized services, and developers can run a local instance on port 8000. The codebase includes comprehensive documentation maintained in reStructured Text format and has been the subject of peer-reviewed publications on registry system design and implementation approaches.

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